Our Fabullo was born with a bad heart malformation: ventricular
hypertrophy which means that the muscle partition of his heart is
gradually thickening, so the cardiac muscle does not work sufficiently
well. He had a heart operation when he was six months old and we
noticed some improvement. He was having many respiratory problems
when catching even a light cold and was often taken to hospital
for therapies. He was, however, an intelligent child, desiring to
do things; even with his feeble little legs he achieved some targets.
He was crazy about toy cars and he loved playing with his little
sister Michela, who is now seven. A bit naughty like all kids and
much determined not to be illtreated by other children. He was a
brave and happy child although he lead a complicated life.
In November 2006 his little heart suddenly grew worse and another
operation was necessary, this time a quite complex one. The cardiac
surgeons did not give us much hope, but after a few hours they told
us the operation turned out very well. We were happy, ready to deal
with the recovery: intensive therapy, drugs, nourishment problems.
Unfortunately two days after the bad news: Fabio had a brain stroke.
When out of intensive therapy our child was in vegetative state,
did not recognize us, no motion control, no relation whatsoever
with the outer world, nourished by feeding tube: spastic quadriparesis.
A nightmare. Very much worse than fighting against respiratory problems
and rushing to hospital at any hour as we did before.
wasn't the same child any more.
Angela and Paolo, Fabullo's mom and dad